#92 Getting Your House in Order: Planning End of Life Care with Clare Fuller & Dani Ayre

In the final episode of our series of podcasts,  we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This episode focuses on Advance Care Planning associated specifically with End of Life Care. We explore what is meant by End of Life Care and break down care into the last years, months and days of life.

Key messages from our discussion

• Advance Care Planning is so much more than about End of Life Care

• We acknowledge the difficulties that are caused when proactive planning is not in place

• We explore tools to help identify when a person might be approaching the end of life and discuss the SPICT Tool, GSF and the 

• It is possible to identify people who might be approaching the last year of life

• We discuss CPR and when it is no longer an appropriate medical treatment for a person

• We explore what specific actions could be considered in the last years, months, weeks and days of life

• We explore services available to people in the last years of life

Resource

• Read the GMC: Guidance: Treatment and care towards the end of life for definitions of EoLC

• Read the NICE: End of life care for adults: service delivery  NICE guideline [NG142] Published: 16 October 2019 for definitions of EoLC

• Read the NICE: End of life care for adults  Quality standard [QS13] Published: 28 November 2011 for definitions of EoLC

• Access the SPICT Tool: SPICT for information on identification

• Access the GSF Proactive Identification Tool or information on identification

• Find out more about the AMBER care bundle when recovery is uncertain 

• Find out more about the Karnofsky performance score

• Find out more about the Clinical Frailty Score 

• Access information about the SR 1 form 

• Find out more about the work of the Waiting Room Revolution Team 

• Find out more about the Carers Needs Assessment Tool 

• Find out more about medication review STOPP-START v.2 Screening Tool Of Older People's Prescriptions (STOPP) Screening Tool to Alert to Right Treatment (START) 

• Information about Fast Track Continuing HealthCare 

• Access the series of podcasts available, specifically focussing on caring for someone approaching the end of life at home Dying at home, what you need to know and how to be prepared - Recognising when someone might be in the last stages of life podcast 68 to 74

Bio: 

Dani is a specialist Palliative Care nurse and Educator currently working at Norfolk and Norwich University Hospital. She has over 15 years’ experience in Palliative and End-of-Life Care (PEoLC). She previously worked in Gibraltar for over 8 years, implementing and leading a Hospice Outreach Service for the community of Gibraltar. She has also worked in the community in Palliative care and Long Term conditions and briefly in the acute sector. 

Dani has furthered her knowledge throughout her career by achieving a Distinction in her PG Certificate at Masters level in Palliative Medicine and completed 2 further Masters modules in leadership and education in Palliative care. She is passionate about raising awareness and educating on Palliative care and the importance of Advance care Planning  not only to Health care professionals and the general public.