Welcome to conversations about Advance Care Planning. This is the podcast where we talk about Advance Care Planning, what it is, how to do it and why it matters. Conversations about Advance Care Planning has grown from my passion to support professional understanding and promote public awareness about planning ahead.
#91 Getting Your House in Order: Legacy & memory making with Clare Fuller & Dani Ayre 29.04.24 In the fifth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This quite emotive episode focuses on legacy and memory making and includes wonderful examples of what this looks like in practice. You will also find a wealth of material in the show notes and resource section for this podcast. See show notes and resource.
#90 Getting Your House in Order: Thinking about who would speak for you with Clare Fuller & Dani Ayre 22.04.24 In the fourth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and build on our discussions to start thinking about who would support you to make decisions or make decisions on your behalf if you ever lost the ability to speak for yourself. See show notes and resource.
#89 Getting Your House in Order: Thinking about what you don’t want with Clare Fuller & Dani Ayre 15.04.24 In the third episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you don’t want and how this can be documented in an Advance Decision to Refuse Treatment. See show notes and resource.
#88 Getting Your House in Order: Thinking about the things you do want with Clare Fuller & Dani Ayre 08.04.24 In the second episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you do want and how this can be documented in an Advance Statement of Wishes and Preferences. See show notes and resource.
#87 Getting Your House in Order: Thinking about what matters most to you with Clare Fuller & Dani Ayre 01.04.24 In this episode we explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We start at the very foundations and talk about why What Matters Most is at the heart of Advance Care Planning. See show notes and resource.
#86 Think, Talk, Act with Wendy Hills 25.03.24 In this episode it is my pleasure to talk with Wendy Hills. Wendy has over 30 years’ experience as a Nurse qualifying in 1992, and specialising in Cancer and Chemotherapy. For a decade she developed chemotherapy services, including developing Nurse led chemotherapy and intravenous access in East Kent Hospitals. Wendy is currently the Director of Nursing and Care Services for Pilgrims Hospices.
I learn about the Advance Care Planning Project Think, Talk Act and why this is so important to Wendy. We talk about upstreaming Advance Care Planning, the importance of identifying patients who may benefit from Planning earlier and share our excitement at the May Advance Care Planning conference and book tour with Sammy Winemaker & Hsien Seow, pioneers of the Waiting Room Revolution and authors of Hope for the Best Plan for the Rest. See show notes and resource.
#85 The Safari Concept with Dr. Christian Ntizimira 18.03.24 In this episode it is my pleasure to talk with Dr. Christian Ntizimira, author of “The Safari Concept: An African Framework on End-of-Life Care” and Founder/Executive Director of the African Center for Research on End-of-Life Care. Christian shares the journey which led him to write the Safari Concept and we explore how culture and belief impact communication and care.
It is a powerful episode with messages about bias, development of culturally appropriate models and recognition of Ubuntu – I am because we are. See show notes and resource.
#84 Alison Gardner & Sophy Horner Last Days Matter 11.03.24 In this episode it is my pleasure to talk with Alison Gardner & Sophy Horner from St John's Hospice about their incredible programme Last Days Matter. The programme aims to support people in looking after their loved ones at home and is very much a compassionate community approach to care.
I learn how the programme was developed, what it includes and how to access the Last Days Matter resource. See show notes and resource.
#83 Lasting Power of Attorney with Gary Rycroft 04.03.24 In this episode it is my pleasure to talk with Gary Rycroft, a solicitor and resident legal expert on Rip Off Britain. Gary has also been a trustee for what was the National Council for Palliative Care and later a chair of the Dying Matters Forum. This is a supper conversation, we talk about the podcast Gary created as part of the We Need to Talk About Death series with Dame Joan Bakewell and we talk about Gloria Hunniford’s live televised Lasting Power of Attorning signing. We also cover capacity, digital assets and Advance Decisions to Refuse Treatment and there is so much to learn from this rich conversation. See show notes and resource.
#82 What living well with dementia looks like with Peter Berry and Deb Bunt 26.02.24 In this episode it is my pleasure to talk with Peter Berry and Deb Bunt. Peter was diagnosed at 50 with early onset Alzheimer’s.
Previously the owner of a thriving timber business, Peter’s life changed upon the diagnosis. He has emerged through depression and two suicide attempts to be a passionate advocate of living well with dementia. A keen cyclist, Peter has used his cycling to raise money for and awareness of Alzheimer’s. He is often seen cycling around rural Suffolk on his penny farthing bike.
Deb retired to Suffolk from London and found a new purpose in life when she befriended Peter. One of Deb’s ambitions had been to be a publisher author and meeting Peter has enabled her to achieve this. Her friendship with Peter has also instilled a new-found confidence in Deb which she describes as a wonderful gift from Peter.
We talk about what living well means to Peter and the legacy he is creating through his work. See show notes and resource.
#81 Talking through the intersection between critical care & EoLC 19.02.24 In this episode it is my pleasure to talk to Jim Walmsley, a specialist paramedic in critical care. Jim talks about how Advance Care Planning impacts the work he does, sharing stories and experience. Jim also explains why he is fundraising for the Intensive Care Society and how you can follow and support his iconic high alpine challenge. See show notes and resource.
#80 Why I started a Death Café with Ewout Van-Manen 12.02.24 Listen and see show notes and resource.
#79 Helping to see the person behind the patient with OT Justine Robinson 05.02.24 Listen and see show notes and resource.
#78 Advance Care Planning: Listening not box ticking with Professor Alison Leary 29.01.24 Listen and see show notes and resource.
#77 What Matters Most in action and the power of Communication and kindness with Caroline England. 22.01.24 Listen and see show notes and resource.
#76 Companion Voices with Judith Silver. 15.01.24 Listen and see show notes and resource.
#75 Having fun with Advance Care Planning. 23.10.23 Listen and see show notes and resource.
#74 Changing plans, anticipatory grief and planning ahead. 16.10.23 Listen and see show notes and resource.
#73 What we need to do after a person has died at home. 09.10.23 Listen adnd see show notes and resource.
#72 What changes are there as someone approaches the end of life? 02.10.23 Listen and see show notes and resource.
#71 Symptom control and medication as someone approaches the end of life at home. 25.09.23 Listen and see show notes and resource.
#70 What equipment might be needed to help look after a person who is dying at home. 18.09.23 Listen and see how notes and resource.
#69 Dying at home, what you need to know and how to be prepared - What support is available to help look after a person who is dying at home. 11.09.23 Listen and see show notes and resource.
#68 Dying at home, what you need to know and how to be prepared - Recognising when someone might be in the last stages of life. 04.09.23 Listen and see show notes and resource.
#67 Why we need to talk more about Ordinary Dying with Lizzi Collinge. 28.08.23 Listen and see show notes and resource.
#66 Terminology and language around discontinuing dialysis with Dr Barny Hole & Dr Emma Murphy. 21.08.23 Listen and see show notes and resource.
#65 Living and Dying with Kidney Disease with Dr Barny Hole & Dr Emma Murphy. 14.08.23 Listen and see show notes and resource.
#64 Mental Capacity: it’s decision specific, not a binary concept with Dr Maggie Keeble. 07.08.23 Listen and see show notes and resource.
#63 Advance Care Planning through the lens of a surgeon, daughter and patient with Dr Liz O’Riordan. 31.07.23 Listen and see show notes and resource.
#62 David Bowie & Advance Care Planning: a conversation with Prof. Mark Taubert. 24.07.23 Listen and see show notes and resource.
#61 Living with the end in mind with Wendy Mitchell. 17.07.23 Listen and see show notes and resource.
#60 Advance Care Planning in a relational context with Dr Julian Abel. 10.07.23 Listen and see show notes and resource.
#59 Advance Care Planning from Student Nurse to PhD Student. 03.07.23 Listen and see show notes and resource.
#58 The challenges of Advance Care Planning for people experiencing homelessness with Dr Naheed Dosani. 26.06.23 Listen and see show notes and resource.
#57 The legal framework that underpins Lasting Power of Attorney and Deprivation of Liberty with Victoria Butler-Cole. 19.06.23 Listen and see show notes and resource.
#56 The Court of Protection: Experience of a daughter. 12.06.23 Listen and see show notes and resource.
#55 Lasting Power of Attorney, Deprivation of Liberty Safeguards and the Court of Protection - a family's experience. 05.06.23 Listen and see show notes and resource.
#54 Anticipatory prescribing: what it is, what research tells us and what we can do better with Dr Ben Bowers. 29.05.23 Listen and see show notes and resource.
#53 The power of Memorial Jewellery with Ros Wood. 22.05.23 Listen and see show notes and resource.
#52 The Elephant in the Room Advance Care Planning simulation training with Dr Anna Steel. 15.05.23 Listen and see show notes and resource.
#51 Marking anniversaries and walking alongside a person who is grieving. 08.05.23 Listen and see show notes and resource.
#50 Conversations that are making a difference with Martin Whiskin 13.03.23 Listen and see show notes and resource.
#49 Reflecting on Conversations About Advance Care Planning with Martin Whiskin 06.03.23 Listen and see show notes and resource.
#48 To dialyse or not to dialyse? How research can support decision making with Dr Lucy Selman 27.02.23 Listen and see show notes and resource.
#47 The importance of having a will in place with Sara Sheppard 20.02.23 Listen and see show notes and resource.
#46 Clare talks on the Magnificent Midlife podcast with Rachel Lancaster 13.03.23 Listen and see show notes and resource.
#45 Fast Track CHC: Accessing Care to support Advance Care Planning with Jo Armstrong. 06.02.23 Listen and see show notes and resource.
#44 Why you need a Lasting Power of Attorney - Clare is a guest on the Medics Money podcast. 30.01.23 Listen and see show notes and resource.
#43 Clair Fisher re-release. 23.01.23 Listen and see show notes and resource.
#42 Advance Care Planning across ages - Common ground and challenges. 16.01.23 Listen and see show notes and resource.
#41 How to find a voice for Advance Care Planning when you can’t talk, with Speech and Language Therapist Sophie Whitehead. 09.01.23 Listen and see show notes and resource.
#40 Working when living with a terminal illness with Joanne Smithson and Sam Royston. 28.11.22 Listen and see show notes and resource.
#39 ReSPECT and Advance Care Planning with Dr Zoe Fritz. 21.11.22 Listen and see show notes and resource.
#38 Advance Care Planning and dementia with Wendy Mitchell. 14.11.22 Listen and see show notes and resource.
#37 Choice is meaningless unless you know all the options with Holly Lyon Hawke holistic funeral director. 07.11.22 Listen and see show notes and resource.
#36 If I get dementia, will they serve me meat? Advance Care Planning for vegans and vegetarians with Amanda Woodvine. 31.10.22 Listen and see show notes and resource.
#35 When doing nothing is doing everything with Dr Erica Borgstrom. 24.10.22 Listen and see how notes and resource.
#34 Featherbed Tales and the power of voice with Caroline England. 17.10.22 Listen and see show notes and resource.
#33 How Conversation Analysis can support Advance Care Planning with Professor Ruth Parry. 10.10.22 Listen and see show notes and resource.
#32 Using tender conversations in Advance Care Planning with Dr Kathryn Mannix. 03.10.22 Listen and see show notes and resource.
#31. Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fee. A special episode re-released for Organ Donation Week 2022. 26.09.22 Listen and see show notes and resource.
#30 Following up Zoe’s pledge to sort out her Digital Legacy 20.09.22 Listen and see show notes and resource.
#29 Why an Advance Care Plan should include your finances with Toby Freeman 06.09.22 Listen and see show notes and resource.
#28 The Platinum Rule and Advance Care Planning with Dr. Harvey Max Chochinov 05.09.22 Listen and see show notes and resource.
#27 Frailty and Advance Care Planning with Dr Patricia Cantley 29.08.22 Listen and see show notes and resource.
#26 Advance Care Planning in Diabetes Management with Dr David Strain 22.08.22 Listen and see show notes and resource.
#25 Reflecting on Conversations About Advance Care Planning with Martin Whiskin 20.06.22 Listen and see show notes and resource.
#24 Sally and the Brain Bank. 13.06.22 Listen and see show notes and resource.
#23 Anticipatory Care Planning in Scotland with Dr Tony Duffy 06.06.22 Listen and see show notes and resource.
#22 The role of End of Life Doulas in Advance Care Planning 30.05.22 Show notes and resource.
#21 How Joy Lists can help Advance Care Planning with Andrew Saunderson 23.05.22 Listen and see show notes and resource.
#20 Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fi 16.05.22 Listen and see show notes and resource.
#19 Advance Care Planning in Canada & running a national Advance Care Planning Day with Karine Diedrich 09.05.22. Listen and see show notes and resource.
#18 Making Memories with Karen Pardoe 02.05.22 Listen and see show notes and resource.
#17 The Waiting Room Revolution with Dr. Hsien Seow and Dr. Samantha Winemaker 25.04.22 Listen and see show notes and resource.
#16 The views of Disabled People on Advance Care Planning. What we can learn from research by scholar activist Gill Loomes-Quinn 18.04.22 Listen and see show notes and resource.
#15 Tower Hamlets Advance Care Planning Project with Lauren Preece 11.04.22 Listen and see show notes and resource.
#14 What can happen if you don’t have an LPA in place & a story of systematic failure. 04.04.22 Listen and see show notes and resource.
#13 Title Donating Your Body for Medical Education with Kim Claridge 28.03.22 Listen and see show notes and resource.
#12 DNACPR: Case law, headlines and facts with Ken Spearpoint 21.03.22 Listen and see show notes and resource.
#11 No Barriers Here with Gemma Allen & Dr Jed Jerwood 14.03.22 Listen and see show notes and resource.
#10 Advance Care Planning and Learning Disabilities with Sue Marsden 07.03.22 Listen and see show notes and resource.
#9 Advance Care Planning & learning from research 28.02.22 Listen and see show notes and resource.
#8 My Care Matters with Zoe Harris 21.02.22 Listen and see show notes and resource.
#7 Advance Decisions to Refuse Treatment with Celia Kitzinger 14.02.22 Listen and see show notes and resource.
#6 How to start your Digital Legacy with James Norris 07.02.22 Listen and see show notes and resource.
#5 Planning ahead for end of life care with critical care and former End of Life Care paramedic with Jim Walmsley 31.01.22 Listen and see show notes and resource.
#4 Talking about planning ahead with family and friends with Sonia Kinnair 24.01.22 Listen and see show notes and resource.
#3 The role of Treatment Escalation Plans in Advance Care Planning with Dr Amy Heskett 17.01.2022 Listen and see show notes and resource.
#2 Using What Matters Most and the Dignity Question in Advance Care Planning with Dr Miriam Colleran 10.01.2022 Listen and see show notes and resource.
# 1 How to ensure your plans are heard with Clair Fisher 06.01.2021 Listen and see show notes and resource.
About Clare
I am a Registered Nurse with 30 years’ experience in End-of-Life Care (EoLC). I have worked in hospices, the community, and acute sectors as a Clinical Nurse Specialist and at a regional level as a Consultant Nurse for the Gold Standards Framework. I am a CQC Specialist Advisor for EoLC and a Lasting Power of Attorney Consultant. I also campaign for proactive Advance Care Planning.
Bespoke Consultancy
If you’d like to find out more about my work contact me.