#91 Getting Your House in Order: Legacy & memory making with Clare Fuller & Dani Ayre

In the fifth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This quite emotive episode focuses on legacy and memory making and includes wonderful examples of what this looks like in practice. You will also find a wealth of material in the show notes and resource section for this podcast.

Key messages from our discussion

• We explore the legacy that can be created through organ donation

• The episode explores the reality of Advance care Planning and how just simply talking about Organ Donation is an example of Advance Care Planning 

• We reflect on memory boxes and Celebration of Life Boxes

• Hand casting in an acute hospital is shared by Dani

• We explore some very personal experiences of memory making we have experienced

Resource

• Listen to Vicki describe her experience of organ donation following the sudden death of her daughter Fi Organ Donation: hope and transition after an unexpected death with Vicki Caldwell, mother of organ donor Fi

• Hear a very personal episode about donating your brain for research Sally and the Brain Bank

• This is an important episode with example of memory making as What Matters Most Getting Your House in Order: Thinking about what matters most to you with Clare Fuller & Dani Ayre 

• Find out more about Nelson’s Journey , an organisation which supports children and young people in Norfolk who’ve experienced the death of a significant person. 

• Hear Martin talk about his voice recording his voice and stories as a legacy for his children Conversations that are making a difference with Martin Whiskin  

• Hear Ros talk about The power of Memorial Jewellery with Ros Wood

• Hear Karen share so many ways of memory making  Making Memories with Karen Pardoe

• Access the letter template for loved ones suggested by Dr Kathryn Mannix

• Hear How to start your Digital Legacy with James Norris

• Access information about Digital Legacy through Digital Legacy Association  website 

Bio: 

Dani is a specialist Palliative Care nurse and Educator currently working at Norfolk and Norwich University Hospital. She has over 15 years’ experience in Palliative and End-of-Life Care (PEoLC). She previously worked in Gibraltar for over 8 years, implementing and leading a Hospice Outreach Service for the community of Gibraltar. She has also worked in the community in Palliative care and Long Term conditions and briefly in the acute sector. 

Dani has furthered her knowledge throughout her career by achieving a Distinction in her PG Certificate at Masters level in Palliative Medicine and completed 2 further Masters modules in leadership and education in Palliative care. She is passionate about raising awareness and educating on Palliative care and the importance of Advance care Planning  not only to Health care professionals and the general public.